北京航空航天大学学报(社会科学版) ›› 2016, Vol. 29 ›› Issue (4): 45-53.DOI: 10.13766/j.bhsk.1008-2204.2014.0458

• 法学论坛 • 上一篇    下一篇

论基因自我决定权

田野, 焦美娇   

  1. 天津大学 法学院, 天津 300072
  • 收稿日期:2014-09-17 出版日期:2016-07-25 发布日期:2016-07-20
  • 作者简介:田野(1979-),男,黑龙江佳木斯人,副教授,博士,研究方向为民商法.
  • 基金资助:

    国家社会科学基金资助项目(13CFX063)

On Right of Gene Self-determination

TIAN Ye, JIAO Meijiao   

  1. Law School, Tianjin University, Tianjin 300072, China
  • Received:2014-09-17 Online:2016-07-25 Published:2016-07-20

摘要:

在基因检测业发展如火如荼的背后,受检者的权利却鲜受重视。基因自我决定权是受检者的核心权利,是基因检测法律规制的关键所在。其以知情同意为核心,是指受检者在基因检测中根据自己的意志决定是否进行基因检测,对检测过程中采取的行为措施是否同意,以及对基因信息如何处理的最终决定权。基因自我决定权属于一般人格权,权利主体为受检者,客体为人体基因。基因自我决定权的行使,主要体现在对检测流程及其结果基于充分告知的同意。基因自我决定权并非绝对,在特殊情况下应受到限制。

关键词: 基因检测, 自我决定权, 一般人格权, 权利内容, 权利行使

Abstract:

Behind the development of the genetic testing industry in full swing, few people pay attention to the rights of the subjects. The right of gene self-determination is the core right of the subjects, and it is the key to the legal regulation of genetic testing. The core of the right is informed and consent. It refers that the rights of the subjects in genetic testing to decide whether to take the test or not, and whether to agree to take the measures during the test and the final decision on how to deal with genetic information on their own free will. The right of gene self-determination belongs to the general personality right. The subject is testee and the object is the human genome. The exercise of the right is mainly reflected in the fully informed consent of the testing process and results. This right is not an absolute right, and therefore it should be restricted under certain circumstances.

Key words: genetic testing, right of self-determination, right of general personality, right content, right exercised

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